ME-CFSCommunity.com

About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe

Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, France, Germany, Greenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Turkey, Ukraine, United Kingdom, United States and Venezuela.

Members

  • Penny Nance
  • Jennifer Slattery
  • Pink Rose
  • rafael pohlak
  • Shelly Burlison
  • cc raltro
  • Audra Starks
  • Susie Collins
  • Sandi Harrington
  • Jane Luft
  • Alicia Berger
  • Lisa Schicht

Birthdays

Latest Activity

OMGoodness - The Reaper? We'll just imagine it has something to do with Farming, ok? LOL
19 minutes ago
Thank you ladies........I'm just tickled pink if it makes you smile! I feel like that is the best reaction to art!
23 minutes ago
Hi Jane,thanks for the compliment!some yrs back i found that the last part of my name means The Reaper,i hate to know of what ! it is pronounce Martes,take care and keep on painting,love marthese.
3 hours ago
Thanks for your responses guys, The paremedics and then the doctors at the hospital first did the FAST test for stroke to make sure it wasn't to do with a bleed, they then did a serious of tests of my reactions and strength in my limbs and eyes, if…
3 hours ago
4 hours ago
It is good to be back with all of you, and I am comforted and bathed in the feeling, that others feel like I do today. I have been away from this site for too long, and as soon as I looked at my inbox I was heartened to see the message from Paula. Y…
4 hours ago
Shafiq, my heartflelt sympathy and admiration for your contribution to your country's present suffering, in the floods. It is almost like the world has forgotten Pakistan's troubles according to some reports in the media. I do hope and pray that you…
4 hours ago
New Retrovirus found in Europe the original text is in French: http://www.rtlinfo.be/info/magazine/sciences_et_sante/732488/decouverte-un-nouveau-virus-pourrait-causer-la-fatigue-chronique Here is the English translation (according to Google): Re…
6 hours ago
hi all. my name is sue and i live in toronto. i would love to communicate with others near me as i dont have any friends or family in toronto that really understand what i am going through. i have severe CFS, which i have had for almost 18 yrs now.…
10 hours ago
:D
13 hours ago
There ya go Paula!
13 hours ago
Thanks Marthese! And what a great name!
13 hours ago
Thanks Kathleen!
13 hours ago
Thanks for your lovely comments...........I do like color and it apparently shows in my paintings LOL! Flowers are so full of color, I just love them! Isn't it always fun to learn new things? Thank YOU Robin for that info...who knew? lol .
13 hours ago
they are SO gorgeous........looking forward to the pics!!!!
13 hours ago
First of all Lee, I'm a Canadian living in the Niagara region & this naturopath has been around for years & has always been very sought after. What I like about him is he has kept up with current technology & isn't giving an educated opinion. The li…
13 hours ago
Just read "Claiming Inner Peace" - what a powerful analogy. Thank you, Paula. Gwyneth
13 hours ago
I will be sharing m bouganvillea soon. I had to move its location because it wasn't doing well. It is becoming quite exotic and pictures will be forthcoming
14 hours ago
Kieran, To be honest the mitochondria angle is not something I have looked into in much detail. It is simply that when I was initially diagnosed it was the first scientific theory that really grabbed my attention and I have heard it mentioned quite…
14 hours ago
It is everlasting. Thanks to you Jane.
15 hours ago
 

Welcome . . .

Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy.

Our mission is two-fold:
1) To facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.
2) To help members move beyond the obstacles imposed upon them.

Members easily communicate with one another individually, or in groups using FREE Live Video Chat, Instant Text Messaging, Blogs and Forums as well as other features.

Membership is FREE. Our member roster is held in the strictest confidence. It is not shared with any other organization nor used for any commercial purpose.

Please join us. You'll find us warm and welcoming. Our community interesting and informative.

A technical glitch has disrupted our InTheNews section. Much, but not all, of the material previously posted has been re-posted.

Finally, the National Academy of Sciences Makes It Official:

Study Links Chronic Fatigue to Virus Class

Release of the study findings, additional news items and enlarged illustration of the virus attack may be found at
InTheNews


Q&A with Randy Schekman, editor of Proceedings of the National Academy of Sciences (PNAS), on the reasons behind the delay of the Alter/Lo paper confirming the association between ME/CFS and the XMRV retrovirus

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.
Learn more about and take the ME/CFS & FM Patient Survey

For those current or former residents of the UK who have dealt with the UK medical system. To take the survey please go to the UK Group.

The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami. Learn more about and take the Case Definition Survey

The In My Shoes story contest is now open for entries. The contest is open to anyone with ME/CFS and FM or anyone who has had experience in supporting or caring or living with someone with ME/CFS and FM. Learn More.

Mary Schweitzer,a well respected observer and commentator, has written a thought provoking article which deserves to be read, and commented upon, by everyone in our ME-CFSCommunity. Link: What do we have if we do not have CFS?

The new group ME Soul Serenity has been formed by BETHANY YAGCI of Turkey. It is a place ... to help us rest, pace ourselves and find comfort for our souls.

It's a place where we can all bless someone on one of our better days, and get blessed by someone on a day when we need it. Some of us are good at poetry, some good at finding soothing quotes - we may all be different but our needs are similar.

New UK Group is formed.
A great deal of time and effort has gone into the development of the new UK Group by Kieran Hall before this formal opening of the group. We welcome his efforts, as well as those who assisted him, to reach out to to serve those from the UK, no matter where they currently reside, affected by ME/CFS and the unique issues with which they must contend.

Got a question about ME/CFS? Be sure to Ask Dr Hyman.

There's a fair amount of controversy regarding the role of exercise in easing the symptoms of ME/CFS. Get the truth from a widely acknowledged expert on ME/CFS, The video of Dr Irma Rey who spoke on CFS & Exercise is online in our Expert Assistance section.

Please take a minute to stop by the Store. We have a few items with which you where you can support the programs and services of the ME-CFSCommunity and make a statement about your own battle with ME/CFS.

Then, If you care to grab a cuppa coffee or tea and read a bit, or better yet, meet new friends and chat awhile . . . try our instant messaging Chat Room below or better yet, the Video Chat room where up to six people at a time from anywhere in the world can meet and talk in real time.

Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

A click on the PayPal icon below and a willingness to help yourself and others is all it takes. Those who prefer not to make payments online may send a personal check or money order to cfsKnowledgeCenter, Post Office Box 1611, Loxahatchee, FL 33470, USA.

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Forum

Dan Moricoli

Spirituality and Illness 92 Replies

Started by Dan Moricoli in General Discussion. Last reply by Paula Hayward Aug 26.

Dan Moricoli

Caregivers 21 Replies

Started by Dan Moricoli in General Discussion. Last reply by rachel williams 1 day ago.

Rachel

Thankfulness 99 Replies

Started by Rachel in General Discussion. Last reply by Paula Hayward Aug 27.

sue pattersnon

CFS: Anyone on antivirals? 246 Replies

Started by sue pattersnon in Medical Treatments & Issues. Last reply by Folly Darling Aug 25.

Louann

ADVOCACY for the Mitochondria Challenged 53 Replies

Started by Louann in Advocacy. Last reply by Folly Darling Aug 22.

Blog Posts

Dan Moricoli

Flois Landau has been hospitalized with a very serious condition.

This community's good friend, Flois Landau has been hospitalized with a very serious condition.

Flois is one of that rare breed of people who, while they do not have a particular disease, understand its devastating impact and do what they can to aid those in need.

Floris and her husband David, are important contributors to the ME-CFSCommunity via the Fl
Continue

Posted by Dan Moricoli on August 12, 2010 at 10:30am — 28 Comments

Dan Moricoli

Protecting Your Online Privacy


As virtually every participant in the ME-CFSCommunity is aware, the Internet offers the ability to access previously inconceivable amounts of information in minutes, if not seconds. It also allows for unprecedented levels of direct communication with others around the world. But these features come at a price if you do not take care to protect your privacy.

The ME-CFSCommunity works diligently to protect the privacy of our members' c… Continue

Posted by Dan Moricoli on August 11, 2010 at 1:00pm — 2 Comments

Charlotte Pilgaard

Still undiagnosed!!

This past year has without a doubt, been the most difficult one in my 32. year old life. August of 2009 I became sick with Campylobactor and after that, a nasty throat infection that just wouldn´t go away. During late fall I started really wondering why I didn´t get any better and went to my GP again. My muscles had started to hurt - especially in my thighs, upper arms, back/neck and I found it difficult to climb stairs, walk up hills - and just standing up. Also I was to the point of exhaust

Continue

Posted by Charlotte Pilgaard on August 6, 2010 at 4:36pm — 12 Comments

Kelvin Lord

Embracing Reality

I admit it.

I really blew it, big time. Two weeks ago, after my last "glowing" report about how good I was feeling at the 6-month mark, I took it too far, and overdid it. I
moved from the reality of my health, to a fantasy world of my own
making, which
Continue

Posted by Kelvin Lord on August 6, 2010 at 10:33am — 11 Comments

Sue Lyndes

A Hard Decision

A Hard Decision




It’s now six days since my follow up appointment with my immunologist, Dr. Gupta and it has taken me that long to get my thoughts in order at what transpired. To say it wasn’t a good appointment would be an understatement – how quickly things can change when you no longer technically fit the
description of a disease with a name

Continue

Posted by Sue Lyndes on July 27, 2010 at 2:00pm — 24 Comments

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