ME-CFSCommunity.com

About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit, 501 (c) 3 organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe


Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, Cayman Islands, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, Finland, France, Germany, GreeceGreenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Lithuania, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey, Ukraine, United Kingdom, United States and Venezuela.

Members

  • Fraser Sinclair
  • DJF
  • suzanne kuennen
  • Charles Lapp
  • Leisa Porteous-Semple
  • Axel Tronrud Andersen
  • Simon houle
  • Rachel K
  • Dee Clark
  • Allan Watkins
  • Phil Morgan
  • Rob Parker

Latest Activity

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Yvonne's artwork

Portraits are mostly in pastel. The bride is in oil. The wall niche is in acrylic and the birds are in pastel.
Album posted by Yvonne Seiwell 20 hours ago
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Photos posted by Yvonne Seiwell 20 hours ago
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Photos posted by Yvonne Seiwell 21 hours ago
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Fraser Sinclair was featured 22 hours ago
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Valerie Free commented on Paul Winter's video
This is a good video.  I wish more well people would watch it, and it would be great to have it on a DVD playing for the public on a May 12th awareness day.    
yesterday
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Sarah LaBelle replied to Dana's discussion 'Really Frustrated' in the group The Exercise Group
Dana, Did a doctor tell your your safe maximum is 98 beats per minute? Otherwise, that seems very low.  I was using a rough guide of 220 - my age, then that times 60% for a conservative guess at my heart rate before I would be at that anaerobic…
Wednesday
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Lee replied to Dan Moricoli's discussion 'CFS/ME Alternative Medical Providers'
I thought that I'd share my experience working with a clinic in London called the Optimum Health Clinic, which specializes in working with people with ME/CFS and fibromyalgia. I happened to be in Europe last summer, on a wonderful vacation in…
Wednesday
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Lee replied to Paula Hayward's discussion 'HEALTHY PATHWAYS to Nutrition , Supplements, Alternative Treatments and Helpful Medical Info' in the group Rising Up
Thanks Paula, it is working now, and the product sounds terrific! 
Wednesday
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Paula Hayward replied to Paula Hayward's discussion 'HEALTHY PATHWAYS to Nutrition , Supplements, Alternative Treatments and Helpful Medical Info' in the group Rising Up
MORE ON : Astaxanthin: The Little-Known Miracle Nutrient for Inflammation, Anti-Aging, Athletic Endurance and More Tuesday, May 06, 2008 by Mike Adams, the Health RangerEditor of NaturalNews.com (See all articles...) (NaturalNews) Every once in a…
Wednesday
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DJF and suzanne kuennen were featured Wednesday
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kathleen replied to Maria Hedegaard Kelstrup's discussion 'God healed me!'
Yes  Maria...I know what you mean. I prayed and fasted for years believeing I would be healed. It took over 15 years but I feel somewhat healed in that the worst of the symptoms are gone but I still have problems and impairments.I will take…
Wednesday
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Nancy Henson replied to Nancy Henson's discussion 'Concerted Effort to Get Knowledge of ME out to all Primary Care Physicians' in the group Rising Up
Hi Sheila,  I'm fortunate to be in an online support group. The 5 of us originally met on another forum and that became difficult to deal with so we wandered off and later ended up just communicating via email to each other. The other 4…
Tuesday
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Sheila replied to Nancy Henson's discussion 'Concerted Effort to Get Knowledge of ME out to all Primary Care Physicians' in the group Rising Up
Hi Nancy, I got sick on July 4, 1982 at the age of 38.  So do the math.  Almost 30 years ill and I am 68.  This is a progressive disease.  I worked the first 10 years with it and now all these years later I hardly leave my…
Tuesday
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Maria de Jonge replied to Dana's discussion 'Really Frustrated' in the group The Exercise Group
Dear Dana, I recognize so much in your story that is about acceptance and fighting your illness. And the ignorance of people around you. You are the only expert on your illness, and you know what you can do to make your body feel better, but if you…
Tuesday
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Ed 12-2011c

Photo posted by Ed DeBellevue Tuesday
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Welcome . . .

Should you only be interested in learning about severe fatigue, chronic fatigue syndrome (ME/CFS) or fibromyalgia we invite you to visit: www.cfsknowledgecenter.com. It is an open access website.

The ME-CFSCommunity is reserved for those individuals who wish to learn from, and directly communicate with those who are afflicted with ME/CFS. Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy. 

Our mission is to help members move beyond the obstacles imposed upon them. We seek to facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.

Members easily communicate with one another individually, or in groups using FREE Live Video Chat, Instant Text Messaging, Blogs and Forums as well as other features. 

Membership is FREE and PRIVATE. Our member roster is held in the strictest confidence. It is not shared with any other organization nor used for any commercial purpose. 

You are welcome to join us. You'll find us warm and welcoming. Our community interesting, informative and supporting.


Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest to the community.

 

This second in the series of videos featuring the noted physiologist, Kenneth J. Friedman, Ph.D., he discusses the development of biomarkers for ME/CFS. View it in our Video Section.

Noted expert, Dr. Kenneth J. Friedman, discusses the physiological aspects of ME/CFS and why it makes those afflicted feel the way they do. View it in our Video section.

This is the first of a series of videos Dr. Friedman has made for cfsKnowledgeCenter and the members of the ME-CFSCommunity.

Kenneth Friedman, Ph.D., is a member of the Board of Directors of the IACFS/ME, Associate Professor of Pharmacology and Physiology, New Jersey Medical School (retired) and a member of the Board of Advisors of cfsKnowledgeCenter.

We've re-organized our Continuing News Stories by giving each of the following articles their own page. You'll find the links to each within the InTheNews section as well as those immediately shown below.

Clear insights and actionable information from widely recognized authorities are the hallmarks of the Expert Assistance series of videos produced specifically for those afflicted with ME/CFS and related illnesses.

The entire Expert Assistance video series is now available AT NO CHARGE.

View them as many times as you like. Tell your friends, and physician, about them. Both patients and medical professionals will find them an excellent, and frequently referenced, source of valuable information.

When viewing the series, we hope you will also take a moment to consider their value to your pocketbook as well as your path towards wellness. We hope that you will respond in kind and support this effort to provide you with Expert Assistance with a contribution to keep the community up and running and able to continue to produce these ground breaking videos for you.

 

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.

Over 450 people have completed the study thus far. Have You? It's important that we assist the research on ME/CFS in every way we can. Please help, it takes just a few minutes of your time.
Learn more about and take the ME/CFS & FM Patient Survey


The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami.

Dr Nancy Klimas is delighted that so far over 675 people from around the world have taken the survey. Won't you please join them?


Learn more about and take the Case Definition Survey


If you are a current or former resident of the UK who has dealt with the UK medical system, please help us to gather the data needed to work for change. To take the survey please go to the UK Group.

 

Got a question about ME/CFS? Be sure to Ask Dr Hyman.

 

Please take a minute to stop by the Store. We have a few items with which you where you can support the programs and services of the ME-CFSCommunity and make a statement about your own battle with ME/CFS.

 

Then, If you care to grab a cuppa coffee or tea and read a bit, or better yet, meet new friends and chat awhile . . . try our instant messaging Chat Room below or better yet, the Video Chat room where up to six people at a time from anywhere in the world can meet and talk in real time.

 

Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

Won't you please Help Us to Help You?

A click on the PayPal icon below and a willingness to help yourself and others is all it takes. Those who prefer not to make payments online may send a personal check or money order to cfsKnowledgeCenter, Post Office Box 1611, Loxahatchee, FL 33470, USA.

 

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    Forum

    BETHANY YAGCI

    Best Community 1 Reply

    Started by BETHANY YAGCI in General Discussion. Last reply by Beth Hinneberg Oct 31, 2011.

    Sarah G

    dating ME/CFS 89 Replies

    Started by Sarah G in Personal Relationships & ME/CFS. Last reply by Lee Jan 20.

    Dan Moricoli

    Spirituality and Illness 134 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Pink Rose Dec 5, 2011.

    Dan Moricoli

    Caregivers 40 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Peggy Ware Stahl Sep 27, 2011.

    Rachel

    Thankfulness 98 Replies

    Started by Rachel in General Discussion. Last reply by Amy Oct 16, 2011.

    Blog Posts

    Dan Moricoli

    On a Personal Note: Are Things Changing?

    Are Things Changing?

    When asked by a new acquaintance this week "How are you?", I replied, to keep things simple, "On the road to recovery from chronic fatigue…

    Continue

    Posted by Dan Moricoli on January 7, 2012 at 10:00am — 6 Comments

    Moderator

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    http://news.sciencemag.org/scienceinsider/2011/12/civil-court-rules-against-chronic.html?ref=hp

     

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    by Jon Cohen on 20 December 2011, 4:30 PM

    Embattled researcher Judy Mikovits lost an important round in court yesterday in a civil suit…

    Continue

    Posted by Moderator on December 24, 2011 at 5:30am — 3 Comments

    Cort

    Dr. Klimas Talks! - On the New ME/CFS Research Institute at NSU

    I can promise we will be providing cutting edge research and care, and educating providers like never before. 



    Dr. Nancy Klimas





    Dr. Klimas recently left the University of Miami to head up a new Institute dedicated to researching chronic fatigue syndrome (ME/CFS) and Gulf War Illness at Nova Southeastern University. Dr. Klimas worked at the Univ. of…

    Continue

    Posted by Cort on December 21, 2011 at 4:30pm

    Moderator

    Dr Nancy Klimas on Her Move From the University of Miami

    The following announcement was sent to us by Dr Klimas early this morning:

    Well I can finally let the official cat out of the official bag.  Its not easy starting a new institute!  But my last UM day  was Monday and I am now a member of the NSU faculty, photo ID and everything..  I don't have a  phone or an office yet, but that is coming!  For the time being I will based in the Kendall office (…

    Continue

    Posted by Moderator on December 9, 2011 at 6:58am — 14 Comments

    Moderator

    Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale

    From: Virology Blog

    Chronic Fatigue Syndrome and the CDC: A Long, Tangled Tale

    23 November…

    Continue

    Posted by Moderator on December 3, 2011 at 7:25am — 1 Comment

    Moderator

    Mikovits Update: Missing notebooks returned to Reno chronic disease lab

    Missing notebooks returned to Reno chronic disease lab 

    Nov. 28, 2011 Written by Frank X. Mullen Jr./Reno Gazette

    Critical research notebooks missing from a Reno chronic disease lab have been returned, officials of the Whittemore Peterson Institute for Neuro-Immune Disease said Monday.

    Documents filed last week in a civil case in Reno allege that Judy Mikovits, the former head of research at the…

    Continue

    Posted by Moderator on December 3, 2011 at 7:09am

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