ME-CFSCommunity.com

About Us

The ME-CFSCommunity is a creation of cfsKnowledgeCenter, Inc., a member supported, Not for Profit, 501 (c) 3 organization.

Our members may come from many countries but we are united in our determination to learn from, and to assist, one another in moving beyond the obstacles imposed upon us by our illness.

Our Membership Spans the Globe


Our members reside in:
Algeria, Antigua and Barbuda, Argentina, Armenia, Australia, Austria, Bahamas, Belgium, Belize, Brazil, Bulgaria, Canada, Cayman Islands, China, Christmas Island, Columbia, Czech Republic, Denmark, Egypt, Finland, France, Germany, GreeceGreenland, Iceland, India, Indonesia, Ireland, Iran, Israel, Italy, Jamaica, Japan, Kenya, Lithuania, Malta, Malaysia, Mexico, Myanmar, Netherlands, New Zealand, Nicaragua, Northern Ireland, Norway, Pakistan, Philippines, Poland, Portugal, Puerto Rico, Romania, Russian Federation, Singapore, Slovakia, South Africa, Spain, Sweden, Switzerland, Taiwan, Thailand, Turkey, Ukraine, United Kingdom, United States and Venezuela.

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Latest Activity

Darden Burns posted a blog post

Fibromyalgia - A Syndrome of Variations

Fibromyalgia Syndrome is a complex debilitating health disorder which is characterized primarily by widespread musculoskeletal pain and is often accompanied by a range of other symptoms including fatigue, sleep disturbances, gastrointestinal problems, thyroid dysfunction, headaches, and brain fog. There is historical evidence that this condition has been in existence for hundreds of years but only in the last 25 years has fibromyalgia achieved recognition from the medical community as a…See More
yesterday
Julie McCloskey replied to Dan Moricoli's discussion Spirituality and Illness
"Thank you for sharing your moving story; I see many similarities with miine.  Unfortunately my brain is not functioning too well right now so I cannot provide any intelligent reply.  Just know that you are not alone. "
yesterday
Julie McCloskey updated their profile
yesterday
Rob Parker replied to lynn weiss's discussion HAS ANYONE TRIED SALINE IV'S FOR TEMPORARY RELIEF? DR. DAVID BELL'S FINDINGS?
"hi Lynn that sounds like it was quite a trip.  sure hope that you get some positive results from the trial, anything that would help.  i have been tested for diabetes, at least twice.  negative.  i think i do get hypoglycemic.…"
Sunday
May 12th replied to April Lesniewski's discussion Books to help our loved ones understand us better
"Id suggest Dr Alison Bested's book "Hope and Help for Chronic Fatigue Syndrome and Fibromyalgia""
Sunday
Blair A. Miller updated their profile
Sunday
lynn weiss replied to ian knott's discussion doctors ignorance
"Ian, I have been with ME for close to 20yrs, you need immune panel done.  I waited too long.  Where are you.  Call CFIDS in MA.  I will post number when I can find it.  I only know USA. "
Saturday
lynn weiss replied to ian knott's discussion doctors ignorance
"Hey, Never worry about spelling/we are all effected in brain. "
Saturday
lynn weiss replied to lynn weiss's discussion HAS ANYONE TRIED SALINE IV'S FOR TEMPORARY RELIEF? DR. DAVID BELL'S FINDINGS?
"Rob, were u ever tested for diabetes? Private message is a good way.....I would like to compare some blood work, since it is said there is no two of us with same results.   "
Saturday
lynn weiss replied to lynn weiss's discussion HAS ANYONE TRIED SALINE IV'S FOR TEMPORARY RELIEF? DR. DAVID BELL'S FINDINGS?
"Hi Rob,  I hope you are having a BETTER day!!!!  This is a crazy illness!!!!!!  Well, I am back from my journey up North.  I was not really at "Stanford" but more people would know of it than where I went was Mountain…"
Saturday
glenna martin posted a photo
Saturday
glenna martin replied to Beverly Speakes's discussion What can you tell me about low dose Naltrexone?
"Hi,  I have ME/CFS/FM, multiple food and chemical sensitivities, IBS, GERD, etc- tried everything and finally (almost) gave up on feeling better, was just trying to manage pain and fatigue and figure out how to get through the day.  I see…"
Saturday
Ellie Strand commented on Dan Moricoli's group Wisconsin ME/CFS Assn
"Cort published an informative and hopeful interview/survey of ME/CFS docs in Phoenix Rising.  Perhaps you could get reprint rights?"
Saturday
Garry A Cooley updated their profile
Saturday
Paula Hayward replied to Paula Hayward's discussion HEALTHY PATHWAYS to Nutrition , Supplements, Alternative Treatments and Helpful Medical Info in the group Rising Up
" GREAT ARTICLE ON FIBRO WITH HELPFUL DIRECTIONS http://www.fmnetnews.com/fibro-basics/treatment/non-drug-therapies"
Friday
Anna Carla replied to April Lesniewski's discussion CFS newbie here!
"My boyfriend asks me now how come i don't talk to him anymore when we go lie down to go to sleep and it almost feels like I can't, i'm just too dam tired to talk.  Perhaps it is somethign like that...he says i turn into a…"
Friday
 

Welcome . . .

Should you only be interested in learning about severe fatigue, chronic fatigue syndrome (ME/CFS) or fibromyalgia we invite you to visit: www.cfsknowledgecenter.com. It is an open access website.

The ME-CFSCommunity is reserved for those individuals who wish to learn from, and directly communicate with those who are afflicted with ME/CFS. Access to the various sections and features of the ME-CFSCommunity beyond the Main Page is limited to registered members only to protect their privacy. 

Our mission is to help members move beyond the obstacles imposed upon them. We seek to facilitate the free and open exchange of information on ME/CFS, fibromyalgia and related illnesses among those who know the most about the true impact of these afflictions.

Members easily communicate with one another individually, or in groups using FREE Live Video Chat, Instant Text Messaging, Blogs and Forums as well as other features. 

Membership is FREE and PRIVATE. Our member roster is held in the strictest confidence. It is not shared with any other organization nor used for any commercial purpose. 

You are welcome to join us. You'll find us warm and welcoming. Our community interesting, informative and supporting.


Check out InTheNews for daily updates on the latest medical news releases and other news items which may be of particular interest to the community.

 

 

 

 

 

"Yoga & ME/CFS: On the Path Towards Wellness"

An extraordinarily gifted yoga instructor from India with long history of helping those afflicted with debilitating illnesses, including ME/CFS and fibromyalgia has agreed to participate in creating a ground breaking series of videos in association with cfsKnowledgeCenter, the non-profit organization which developed and maintains this, and other websites.

Production arrangements are now being made. Shooting is expected to commence very soon. Formal announcements of the participants in the series will be made upon completion of post production editing.

While our initial funding goal has been met to allow us to begin production, we continue to seek additional funding to allow us to broaden our initial objectives to cover fibromyalgia as well as ME/CFS.

If you'd like to help, please consider a donation of as $5, or more as your circumstances allow, please click on the PayPal logo or link below.

Alternatively, you may send a personal check or money order to: cfsKnowledgeCenter, Post Office Box1611, Loxahatchee, FL 33470, USA.

https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=7561374

 


Noted expert, Dr. Kenneth J. Friedman, discusses various aspects of ME/CFS in very clear and direct terms in this unique series of video created by cfsKnowledgeCenter. View all of them in our Video section.  Download them from our Facebook page or from our YouTube page.


Kenneth Friedman, Ph.D., is a member of the Board of Directors of the IACFS/ME, Associate Professor of Pharmacology and Physiology, New Jersey Medical School (retired) and a member of the Board of Advisors of cfsKnowledgeCenter.

We've re-organized our Continuing News Stories by giving each of the following articles their own page. You'll find the links to each within the InTheNews section as well as those immediately shown below.

Clear insights and actionable information from widely recognized authorities are the hallmarks of the Expert Assistance series of videos produced specifically for those afflicted with ME/CFS and related illnesses.

The entire Expert Assistance video series is now available AT NO CHARGE.

View them as many times as you like. Tell your friends, and physician, about them. Both patients and medical professionals will find them an excellent, and frequently referenced, source of valuable information.

When viewing the series, we hope you will also take a moment to consider their value to your pocketbook as well as your path towards wellness. We hope that you will respond in kind and support this effort to provide you with Expert Assistance with a contribution to keep the community up and running and able to continue to produce these ground breaking videos for you.

Please sign a petition to the Minister of Health of Canada to Fund research for patients with myalgic encephalomyelitis whether a resident of Canada or not. Link to sign or click on flag above.

 

The ME/CFS & FM Patient Survey is a blind (names withheld) research study to gather data from around the world from those afflicted with ME/CFS & FM to further research into the disease. Everyone who is afflicted with ME/CFS or FM is encouraged to take the survey.

Over 450 people have completed the study thus far. Have You? It's important that we assist the research on ME/CFS in every way we can. Please help, it takes just a few minutes of your time.
Learn more about and take the ME/CFS & FM Patient Survey


The ME/CFS Case Definition Survey is a standardized guide for clinicians and research scientists for the evaluation of the impact of various specific symptoms upon those afflicted. It is presented in conjunction with the ME/CFS research team at the University of Miami.

Dr Nancy Klimas is delighted that so far over 675 people from around the world have taken the survey. Won't you please join them?


Learn more about and take the Case Definition Survey


If you are a current or former resident of the UK who has dealt with the UK medical system, please help us to gather the data needed to work for change. To take the survey please go to the UK Group.

 

Got a question about ME/CFS? Be sure to Ask Dr Hyman.

 

Please take a minute to stop by the Store. We have a few items with which you where you can support the programs and services of the ME-CFSCommunity and make a statement about your own battle with ME/CFS.

 

Then, If you care to grab a cuppa coffee or tea and read a bit, or better yet, meet new friends and chat awhile . . . try our instant messaging Chat Room below or better yet, the Video Chat room where up to six people at a time from anywhere in the world can meet and talk in real time.

 

Contributions are sorely needed to support this website. There is no benefactor or foundation supporting us. Our ability to survive rests with the individual members of the community.

Won't you please Help Us to Help You?

A click on the PayPal icon below and a willingness to help yourself and others is all it takes. Those who prefer not to make payments online may send a personal check or money order to cfsKnowledgeCenter, Post Office Box 1611, Loxahatchee, FL 33470, USA.

 

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    Forum

    Best Community 2 Replies

    Started by BETHANY YAGCI in General Discussion. Last reply by Debra Colorio Feb 8.

    dating ME/CFS 110 Replies

    Started by Sarah G in Personal Relationships & ME/CFS. Last reply by ian knott May 17.

    Spirituality and Illness 135 Replies

    Started by Dan Moricoli in General Discussion. Last reply by Julie McCloskey yesterday.

    Caregivers 50 Replies

    Started by Dan Moricoli in General Discussion. Last reply by leah sims Feb 17.

    Thankfulness 98 Replies

    Started by Rachel in General Discussion. Last reply by Amy Oct 16, 2011.

    Blog Posts

    Comment on Mikovits and the Fallout From Fatigue Syndrome Retraction Is Wide in the New York Times

    From The New York Times

    .

    Fallout From Fatigue Syndrome Retraction Is Wide

    By DAVID TULLER

          

    When scientists reported in 2009 that a little-known mouse retrovirus was present in a large number of people with chronic fatigue syndrome, suggesting a possible cause of the condition, the news made international…

    Continue

    Posted by Moderator on February 7, 2012 at 5:00am — 1 Comment

    Win An HP Laptop Computer

    Win An HP Laptop Computer

    A four year old used, but very serviceable, laptop computer is being given away.

    The fully functional computer is a Hewlett Packard DV6000 laptop with a Microsoft XP operating system. It is the personal property of Dan Moricoli since new and is in excellent condition.

    Installed programs include the Microsoft Office Suite including; Word, Excel, Outlook…

    Continue

    Posted by Moderator on February 4, 2012 at 9:30am — 1 Comment

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Lawsuit claims Harvey Whittemore embezzled millions of dollars from former business partners

    Written by Martha Bellisle, Jan. 27, 2012

    The former business partners of Harvey Whittemore, a well-known Nevada lobbyist, land-developer, businessman and lawyer, filed a civil lawsuit Friday claiming he embezzled millions of dollars from the Wingfield company they ran together and misappropriated corporate funds and assets.

    The suit,…

    Continue

    Posted by Moderator on January 28, 2012 at 10:30am — 1 Comment

    On a Personal Note: Are Things Changing?

    Are Things Changing?

    When asked by a new acquaintance this week "How are you?", I replied, to keep things simple, "On the road to recovery from chronic fatigue…

    Continue

    Posted by Dan Moricoli on January 7, 2012 at 10:00am — 5 Comments

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    http://news.sciencemag.org/scienceinsider/2011/12/civil-court-rules-against-chronic.html?ref=hp

     

    Civil Court Rules Against Chronic Fatigue Syndrome Researcher

    by Jon Cohen on 20 December 2011, 4:30 PM

    Embattled researcher Judy Mikovits lost an important round in court yesterday in a civil suit…

    Continue

    Posted by Moderator on December 24, 2011 at 5:30am — 3 Comments

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